Finding Health Terminology Codes

This page provides an index of health terminology code browsers as well as examples for finding code groupings. Researchers may benefit from using multiple resources and methods for finding codes and code groupings.

Health Terminology Code Browsers

*On October 1, 2015, there was a switch from ICD-9-CM to ICD-10-CM. If you are requesting or extracting data from or prior to October 1, 2015, you will need to specify both ICD9 and ICD10 codes.

Health Terminology Code Groupings

A clinical concept may have multiple associated codes, each referencing a specific sub-category of that concept. Using pre-gathered and categorized code groupings can help ensure that your study team finds all relevant data. Your study team may benefit from using several of the following methods/resources when looking for code groupings.

  • Review Methods and Appendix sections of research literature for code groupings

  • Use the UMLS Metathesaurus Browser which containes terms, codes, hierarchies, definitions, and other relationships and attributes from many vocabularies. These include CPT, ICD-10-CM, LOINC, MeSH, RxNorm, and SNOMED CT.

  • The OHDSI ATLAS demo contains many code lists (concept sets) across all domains (diagnoses, procedures, medications, etc.). However, many of these concept sets have not been approved by anyone. Those that have been reviewed and approved are prefixed with brackets, “[ ]”, however even these are subject to change. All concept sets taken from ATLAS should be reviewed by a subject matter expert before use.

  • The National COVID Cohort Collaborative (N3C) has recommended additional diagnosis/problem list code groupings. If you do not have access to the N3C Enclave, you may find a sampling of these codes sets here: n3c_concept_sets.

  • Refer to the Exercises and Case Studies chapter for examples using following Code Maps and Indexes:

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